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Disease and Illness

 
Nothing makes you feel more helpless than when you’re in pain or watching a child, spouse or parent suffering. How do you cope with illness in your family? Have you been diagnosed with a chronic disease? Have you survived a debilitating illness? Do you worry about world health epidemics affecting your family? Share your stories and support for others.
Comments
Replied By: adamtimz on Jan 16, 2015, 10:58PM - In reply to sloomis
I know what you mean. I'm currently taking 19 pills a day, I've had brain surgery to remove a damaged portion of my temoral lobe, and I had a Vagus nerve stimulator implanted in me. After all of this I'm still having siezures every day. It's frustrating, but I guess it's would be a lot worse if we weren't taking the meds.
 
Replied By: cindycharlieam on Jan 8, 2015, 4:17PM - In reply to proud2beeme
I have hashimoto's, fibromyalgia, bursitis IBS and this list goes on and on.  I work full time and it is very difficult as people don't care or don't understand chronic pain and autoimmune diseases.  The only people that do are those that suffer with them.  What are you taking?  I see many physicians and am trying new therapies for pain management as I have to work full time.  I have a hard time walking at work but I have to keep going.  I also have depression and anxiety.  I understand what you are feeling.
 
Replied By: afrenchie on Dec 22, 2014, 12:28PM
In the "I'm Divorcing My Real Life Mommy Dearest" episode, Dr. Freda was speaking with a woman who takes OTC pain medication for chronic pain.  Woman reported taking OTC pain medications daily for 10 years to help manage her pain.  While Dr. Freda addressed alternatives to explore for pain management, I was extremely disappointed that she failed to advise this woman of the damage she could be doing to her liver and kidneys.  Ibuprofen and acetaminophen are TOXIC to your liver and kidneys, not just by one-time overdosing, but also by prolonged use.  It is also very important to avoid other medications such as cold medications and Rx pain meds that also contain ibuprofen and acetaminophen (Norco, Lortab, Vicodin, etc.) when taking OTC pain meds.  Taking multiple medications with ibuprofen and acetaminophen will overdose your system and potentially cause irreversible damage to your liver and kidneys.  Why didn't Dr. Freda address this danger?
 
Replied By: teresaols on Dec 17, 2014, 6:31PM
Dear Dr. Phil,

I have never seen you talk about COPD and how it has affected so many lives.  I was a smoker for almost 50 years and I quit 7 years ago.  I grew up in the era where all kids then thought it was really neat to smoke. My dad knew I was smoking and he told me that I had to buy my own cigarettes.  And at that time they were only about 25 or 30 cents a pack and I babysat for extra money so I could buy my own.  The Dr. that I have been going to for the past 30 years kept trying to get me to quit smoking, but as usual I knew better than him and I continued. Well, I am paying for it now.  I am on oxygen 24 hours a day and use a nebulizer.  I also take pills.  My doctor just says I have tired lungs, but I keep trying to get by.  I have a pulmonologist too, and I started seeing him about 3 years ago and he told me then I might live for about 5 more years.  I'm trying to prove him wrong.  I can walk about a mile with the help of my husband and my walker and I go grocery shopping with him.  As long as I have something to hang onto I do really well. Plus I have a travel oxygen cannister.  This is a devastating disease and a lot of people have it.  I hope you will be able to show interest in it. Teresa Olsen
 
Replied By: sloomis on Dec 16, 2014, 1:37PM
Why do I have to be on 20 pills? Its taking my over the edge.
 
Replied By: proud2beeme on Dec 8, 2014, 2:50PM
Hypothyroidism ( Hashimotos disease) is killing me and there is not a Dr.  that I have seen that cares. I am 47 yrs. old and I do not believe that ( at the rate my body is changing) I will  Not  see my 50 th Bithday...


Can anyone else relate to thie pain &  suffering of this debilitating disease?


i have taken EVERY POSSIBLE MEASURE and made change to help myself  however it  still isn't enough, my body needs more-requires more...More of what, I dont know... Because "I  look good"  ( by society's rule) I cannot get the correct treatment. I sometimes wonder if I were the drug addict or alcoholic off  the street entering the ER if my help would come?


I survived  many years of physical/emotional abuse and now my fate lies in the hands of this debilitating disease. It is so disheartening.
 
Replied By: hvnzfire on Dec 2, 2014, 2:34AM - In reply to mckeenoel
I hope you get better soon! A lot of your symptoms sound like mine. I have these because of a tick borne illness. My heart goes out to you!
 
Replied By: kmcewien on Nov 10, 2014, 8:41PM
I'm hoping someone at the show reads these messages and can pass this message on to the producer for Shemida's episode.

I'm wondering if Shemida has been tested for an MTHFR genetic defect.  It's a genetic issue with processing b-vitamins that elevates inflammation, and it causes all kinds of issues. It seemed like Shemida's list of issues pretty much exactly matches the list of issues it can cause.

One thing that makes me think it is an MTHFR issue is that it started right after a gastric bypass.  It could be she was heavy to begin with because of the gene, she was driven to eat more to correct her levels of folate.  When she had a bypass she removed her body's ability to drive her to eat more folate, and then she got sick.

Please, please, please pass this information on to Shemida and her doctors.  The treatment is literally just taking therapuetic levels of methylated b vitamins (especially folate, b6, and b12).  It's simple, it's cheap, and if that's the problem her health could be restored very quickly.
 
Replied By: positiveonly on Nov 10, 2014, 8:38AM
good morning

I was a very healthy 40 yr old woman up until Aug 15,2012. This day my life was stole from me by a rare and little known syndrome called Guilliane-Barre Syndrome GBS. What is it you ask, well it is when your very own immune system attacks your very own nervous system. I was lucky enough to pull the lucky ticket and win the lottery of health this day. I went to the hospital ER 3 times, my GP 1 time and no one knew anything, in fact the very first Dr sent me home telling me it was in MY HEAD!!! Hahaha I still laugh to this day, because in my head turned into clinging to life in less than a week. I am now left with residual numbness/pain (which I try not to pay attention to), I wear plastic AFOs on my legs so I can support my body. While I was sick, they had me on a ventilator, which they most likely hit my thyroid, now I have no thyroid function. So I am tired, in pain, and have a hard time moving. Had to leave my job, when my family could not afford it, stress makes my condition worse, so I try not to stress this. I stay positive even though curve balls are being chucked at my head......so when people complain they are SICK and the doctors can't find ANYTHING wrong with them, my sympathy is not there. I had little to no tolerance for hypochondriacs before, well now I have none AT ALL.

See the thing is your mind is the most powerful medication you have, you can make yourself well, you can make yourself sick (some things out of control) but for the phantom well... God chose me to have this horrific syndrome where I spent over 11 weeks in a hospital (should have been longer,but I am stubborn). I am choosing to make a difference in others lives. If you truly believe there is something wrong then pursue that, sometimes the doctors (SORRY DR PHIL) are very wrong. Those of you in search of the answer......maybe it lies within you. Choose to make yourself better, think of those little children that have cancer and things, they REALLY have something wrong, they are smiling. Have you ever asked why??

Think before you search for illness!!
 
Replied By: lepsychic on Oct 6, 2014, 9:40PM - In reply to lepsychic
     We are just the poor, the unwanted, the unloved, the uncared for and the attacked. We aren't the usual teenaged druggy or hooker, or deluded money giver for fake love-lifes. Dr.Phil and his TV show doesn't have enough money for the serious ills let alone those of us who only have a little problem.I don't miss his show from sabotaged tv. Too bad he never cared for me because I could have warned him about his relative who got acid in her face. How is she doing anyway? Bet you gave her a lot of money, then and now.

     Don't bother trying to care about other attacks, missing or murdered people. You can't handle the truth, only your simple social psychology.

    

 
 
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