Disease and Illness

 
Nothing makes you feel more helpless than when you’re in pain or watching a child, spouse or parent suffering. How do you cope with illness in your family? Have you been diagnosed with a chronic disease? Have you survived a debilitating illness? Do you worry about world health epidemics affecting your family? Share your stories and support for others.

*****************************************

Soon the Community will be closing down on DrPhil.com. Please log in to your account now to save any content, including images, posts, blogs and comments from your profile that you would like to keep, prior to the section being inaccessible.

Just because the community is closing doesn’t mean the discussions are ending. We still want to hear from you and encourage you to join the conversations on Dr. Phil’s social media channels! You'll be able to find exclusive show content, behind-the-scenes footage, personal Dr. Phil photos and more! And, you can join active viewer conversations.

Come join us:

Facebook
Twitter
Instagram
YouTube
Comments
Replied By: brittksmith89 on Mar 23, 2017, 8:37AM
      my brother wrote this before going into rehab for the third time and was removed from the program because heroin was brought into the facility and put in front of my brother as temptation, and we all know an addict in rehab are not strong enough to say no!!! please help my brother is too young and too good for this. this he wrote with god holding his hand crying out for help. i truly belive god shows you signs when time is near and this is what i gathered and it sadens me my brother is my best friend and has a whole life a head. Im reaching out to the best for help we all are moneied completely out. my dad has had to have two stents put in his heart we just need help please and im begging!!                                                               


LOST AGAIN


Lost again on the wrong side of the tracks, I might as well build a house there and never look back. Every time I turn around I have just let another one that loves me down.  My family is tired, their tired of watching me die. The road I'm headed down it is only a matter of time. So God if your there, if you are really out there please take my reins because I can no longer drive this thing. This thing called life. I might wake up tomorrow and say that I am through, throw my hands up and run, but it won’t take long before all my hard work is gone once more.

 I'm tired, my body aches, my minds gone, and my heart breaks.  I'm just barely hanging on. So God if you’re out there listening to my prayers. Please take me by the hand and walk with me there. Take my reins straight from my hands, take full control and drive me as far away as you will let me go. I don’t want to let my family and loved ones down any longer. They have stood right beside me every step of the way only hoping and praying I will get strong again someday. Lord please be with me through this trying time. Help me fight the demon that just wants me to get high, the high that Is impossible for me to find. Lord if you can’t change me then please just let my family be. They have worried for oh so long, about a man that went blind that may never see.

 

Just take the worry away and please just let them rest.  I have been up as high as the mountains and everyone's so happy for me yet, I know it won't be long before the devils hands unfold and run away with me. Back down to the bottom I'll fall. With nothing left to give nothing at all. I'll stay there for a little while until I've had my last draw. Then I'll call out to you God, and think quietly to myself and ask are you really even there. I'll say God if you’re really out there come take my reins I've lost control and I just need one more chance to change.  I swear I'll change I'll do right this time and I'll mean it just like I did all the other times. Then you'll take my hand and bring me back up and I'll stay for a while until the devil starts taunting me.  Maybe one day Lord he won't stand a chance and his hands won't ever pull me back into his evil trance.

 

 Now, God I know you’re out there and you have never left my side so I'm giving you my reins this one last time. Lord just please never let me have them back. Every time I drive I end up on the wrong side of the tracks and next time I may never make it back. So God you can have my reins. I just want to be free. Free from the thoughts that's chilling me.  Free from the darkness that’s been haunting me. They said just try it once it won't hurt you. Like a fool I gave in, I believed the devils lies wouldn't burn you. This time it was different it took me by surprise. It was kind of like the ocean when you get stuck in a rip tide. Before you know it your lost and there's no one around you. Suddenly you realize you’re stuck in this thing that you feel is going to drown. You feel hopeless and dumb. Why would I believe the devils lies? It’s no different than the time he told me to drink the rum whispered in my ear it will make you feel so numb. But Now I'm here I have already did it, all I can do is pray to God that he will help me to quit it.

 

 It’s crazy to think a Brown powder can do such a thing. Just wait, it gets worse when it hits your veins. I live and steal for the thrill of thirty minutes. Then it's over and all your left with is wanting just one more dose. You will do anything to get that dose. You will lose your true friends and keep your family up for weeks on end wondering if you will ever make it back to see them again. They know the dose you’re searching for could be your last. In your mind you don't care because all you do is mess up every opportunity that comes your way. Why live when you feel your minds gone. Oh but remember don't forget it won't hurt you, or make you feel alone. You get so use to feeling so alone that you forget how to talk to people on your own. Then you have family ask you why do you keep doing this to yourself?  If I had one good answer, I would write it down and hang it on my shelf.

 

 Everyday I wake up my brain tries to kill me. It tells me I want something I know is going to kill me. You live like that for a day then you all will see. You would catch a glimpse of what it’s like to be me. Oh but it wasn't like that before, The Brown powder came in and took control. Now you know why I can't live a normal day. It has changed my life in more ways than just one. Who would have ever thought I would be so dumb. Though people act like it's easy to overcome and I'll be good just before the morning sun. These people I can't blame cause lucky for them they have never takin this flight. I'm not the kid in high school anymore that everyone wants to hang out with. Now I'm looked at as junkie that's just going to try and use you to get a hit. I can't say that it's not true because after all the Brown powder will win and end up in my veins once again. It’s not the life to live please never try it because once you cross the bridge it’s so hard to fight it. There are no redo’s so please let them skip your turn. Take this as one lesson learned.

 

  At just 12 years old I smoked a joint.  Never in my dreams did I think I would ever reach this point.  They tried to tell me not too, but I Knew it all I said “it’s just a joint. “I told myself I would never try anything else by my surprise the devil already had me under his evil spell. But as you can see it's takin me all the way to the end of the street.  My only hope is God I pray he shows up for me to follow.  Last thing I want to say is make sure you don't judge and don't hate, because who really knows what that person has setting on their plate.

 

   (Colton’s poem)
 
Replied By: brittksmith89 on Mar 23, 2017, 8:37AM
      my brother wrote this before going into rehab for the third time and was removed from the program because heroin was brought into the facility and put in front of my brother as temptation, and we all know an addict in rehab are not strong enough to say no!!! please help my brother is too young and too good for this. this he wrote with god holding his hand crying out for help. i truly belive god shows you signs when time is near and this is what i gathered and it sadens me my brother is my best friend and has a whole life a head. Im reaching out to the best for help we all are moneied completely out. my dad has had to have two stents put in his heart we just need help please and im begging!!                                                               


LOST AGAIN


Lost again on the wrong side of the tracks, I might as well build a house there and never look back. Every time I turn around I have just let another one that loves me down.  My family is tired, their tired of watching me die. The road I'm headed down it is only a matter of time. So God if your there, if you are really out there please take my reins because I can no longer drive this thing. This thing called life. I might wake up tomorrow and say that I am through, throw my hands up and run, but it won’t take long before all my hard work is gone once more.

 I'm tired, my body aches, my minds gone, and my heart breaks.  I'm just barely hanging on. So God if you’re out there listening to my prayers. Please take me by the hand and walk with me there. Take my reins straight from my hands, take full control and drive me as far away as you will let me go. I don’t want to let my family and loved ones down any longer. They have stood right beside me every step of the way only hoping and praying I will get strong again someday. Lord please be with me through this trying time. Help me fight the demon that just wants me to get high, the high that Is impossible for me to find. Lord if you can’t change me then please just let my family be. They have worried for oh so long, about a man that went blind that may never see.

 

Just take the worry away and please just let them rest.  I have been up as high as the mountains and everyone's so happy for me yet, I know it won't be long before the devils hands unfold and run away with me. Back down to the bottom I'll fall. With nothing left to give nothing at all. I'll stay there for a little while until I've had my last draw. Then I'll call out to you God, and think quietly to myself and ask are you really even there. I'll say God if you’re really out there come take my reins I've lost control and I just need one more chance to change.  I swear I'll change I'll do right this time and I'll mean it just like I did all the other times. Then you'll take my hand and bring me back up and I'll stay for a while until the devil starts taunting me.  Maybe one day Lord he won't stand a chance and his hands won't ever pull me back into his evil trance.

 

 Now, God I know you’re out there and you have never left my side so I'm giving you my reins this one last time. Lord just please never let me have them back. Every time I drive I end up on the wrong side of the tracks and next time I may never make it back. So God you can have my reins. I just want to be free. Free from the thoughts that's chilling me.  Free from the darkness that’s been haunting me. They said just try it once it won't hurt you. Like a fool I gave in, I believed the devils lies wouldn't burn you. This time it was different it took me by surprise. It was kind of like the ocean when you get stuck in a rip tide. Before you know it your lost and there's no one around you. Suddenly you realize you’re stuck in this thing that you feel is going to drown. You feel hopeless and dumb. Why would I believe the devils lies? It’s no different than the time he told me to drink the rum whispered in my ear it will make you feel so numb. But Now I'm here I have already did it, all I can do is pray to God that he will help me to quit it.

 

 It’s crazy to think a Brown powder can do such a thing. Just wait, it gets worse when it hits your veins. I live and steal for the thrill of thirty minutes. Then it's over and all your left with is wanting just one more dose. You will do anything to get that dose. You will lose your true friends and keep your family up for weeks on end wondering if you will ever make it back to see them again. They know the dose you’re searching for could be your last. In your mind you don't care because all you do is mess up every opportunity that comes your way. Why live when you feel your minds gone. Oh but remember don't forget it won't hurt you, or make you feel alone. You get so use to feeling so alone that you forget how to talk to people on your own. Then you have family ask you why do you keep doing this to yourself?  If I had one good answer, I would write it down and hang it on my shelf.

 

 Everyday I wake up my brain tries to kill me. It tells me I want something I know is going to kill me. You live like that for a day then you all will see. You would catch a glimpse of what it’s like to be me. Oh but it wasn't like that before, The Brown powder came in and took control. Now you know why I can't live a normal day. It has changed my life in more ways than just one. Who would have ever thought I would be so dumb. Though people act like it's easy to overcome and I'll be good just before the morning sun. These people I can't blame cause lucky for them they have never takin this flight. I'm not the kid in high school anymore that everyone wants to hang out with. Now I'm looked at as junkie that's just going to try and use you to get a hit. I can't say that it's not true because after all the Brown powder will win and end up in my veins once again. It’s not the life to live please never try it because once you cross the bridge it’s so hard to fight it. There are no redo’s so please let them skip your turn. Take this as one lesson learned.

 

  At just 12 years old I smoked a joint.  Never in my dreams did I think I would ever reach this point.  They tried to tell me not too, but I Knew it all I said “it’s just a joint. “I told myself I would never try anything else by my surprise the devil already had me under his evil spell. But as you can see it's takin me all the way to the end of the street.  My only hope is God I pray he shows up for me to follow.  Last thing I want to say is make sure you don't judge and don't hate, because who really knows what that person has setting on their plate.

 

   (Colton’s poem)
 
Replied By: brittksmith89 on Mar 23, 2017, 8:37AM
      my brother wrote this before going into rehab for the third time and was removed from the program because heroin was brought into the facility and put in front of my brother as temptation, and we all know an addict in rehab are not strong enough to say no!!! please help my brother is too young and too good for this. this he wrote with god holding his hand crying out for help. i truly belive god shows you signs when time is near and this is what i gathered and it sadens me my brother is my best friend and has a whole life a head. Im reaching out to the best for help we all are moneied completely out. my dad has had to have two stents put in his heart we just need help please and im begging!!                                                               


LOST AGAIN


Lost again on the wrong side of the tracks, I might as well build a house there and never look back. Every time I turn around I have just let another one that loves me down.  My family is tired, their tired of watching me die. The road I'm headed down it is only a matter of time. So God if your there, if you are really out there please take my reins because I can no longer drive this thing. This thing called life. I might wake up tomorrow and say that I am through, throw my hands up and run, but it won’t take long before all my hard work is gone once more.

 I'm tired, my body aches, my minds gone, and my heart breaks.  I'm just barely hanging on. So God if you’re out there listening to my prayers. Please take me by the hand and walk with me there. Take my reins straight from my hands, take full control and drive me as far away as you will let me go. I don’t want to let my family and loved ones down any longer. They have stood right beside me every step of the way only hoping and praying I will get strong again someday. Lord please be with me through this trying time. Help me fight the demon that just wants me to get high, the high that Is impossible for me to find. Lord if you can’t change me then please just let my family be. They have worried for oh so long, about a man that went blind that may never see.

 

Just take the worry away and please just let them rest.  I have been up as high as the mountains and everyone's so happy for me yet, I know it won't be long before the devils hands unfold and run away with me. Back down to the bottom I'll fall. With nothing left to give nothing at all. I'll stay there for a little while until I've had my last draw. Then I'll call out to you God, and think quietly to myself and ask are you really even there. I'll say God if you’re really out there come take my reins I've lost control and I just need one more chance to change.  I swear I'll change I'll do right this time and I'll mean it just like I did all the other times. Then you'll take my hand and bring me back up and I'll stay for a while until the devil starts taunting me.  Maybe one day Lord he won't stand a chance and his hands won't ever pull me back into his evil trance.

 

 Now, God I know you’re out there and you have never left my side so I'm giving you my reins this one last time. Lord just please never let me have them back. Every time I drive I end up on the wrong side of the tracks and next time I may never make it back. So God you can have my reins. I just want to be free. Free from the thoughts that's chilling me.  Free from the darkness that’s been haunting me. They said just try it once it won't hurt you. Like a fool I gave in, I believed the devils lies wouldn't burn you. This time it was different it took me by surprise. It was kind of like the ocean when you get stuck in a rip tide. Before you know it your lost and there's no one around you. Suddenly you realize you’re stuck in this thing that you feel is going to drown. You feel hopeless and dumb. Why would I believe the devils lies? It’s no different than the time he told me to drink the rum whispered in my ear it will make you feel so numb. But Now I'm here I have already did it, all I can do is pray to God that he will help me to quit it.

 

 It’s crazy to think a Brown powder can do such a thing. Just wait, it gets worse when it hits your veins. I live and steal for the thrill of thirty minutes. Then it's over and all your left with is wanting just one more dose. You will do anything to get that dose. You will lose your true friends and keep your family up for weeks on end wondering if you will ever make it back to see them again. They know the dose you’re searching for could be your last. In your mind you don't care because all you do is mess up every opportunity that comes your way. Why live when you feel your minds gone. Oh but remember don't forget it won't hurt you, or make you feel alone. You get so use to feeling so alone that you forget how to talk to people on your own. Then you have family ask you why do you keep doing this to yourself?  If I had one good answer, I would write it down and hang it on my shelf.

 

 Everyday I wake up my brain tries to kill me. It tells me I want something I know is going to kill me. You live like that for a day then you all will see. You would catch a glimpse of what it’s like to be me. Oh but it wasn't like that before, The Brown powder came in and took control. Now you know why I can't live a normal day. It has changed my life in more ways than just one. Who would have ever thought I would be so dumb. Though people act like it's easy to overcome and I'll be good just before the morning sun. These people I can't blame cause lucky for them they have never takin this flight. I'm not the kid in high school anymore that everyone wants to hang out with. Now I'm looked at as junkie that's just going to try and use you to get a hit. I can't say that it's not true because after all the Brown powder will win and end up in my veins once again. It’s not the life to live please never try it because once you cross the bridge it’s so hard to fight it. There are no redo’s so please let them skip your turn. Take this as one lesson learned.

 

  At just 12 years old I smoked a joint.  Never in my dreams did I think I would ever reach this point.  They tried to tell me not too, but I Knew it all I said “it’s just a joint. “I told myself I would never try anything else by my surprise the devil already had me under his evil spell. But as you can see it's takin me all the way to the end of the street.  My only hope is God I pray he shows up for me to follow.  Last thing I want to say is make sure you don't judge and don't hate, because who really knows what that person has setting on their plate.

 

   (Colton’s poem)
 
Replied By: jessiclewell on Sep 28, 2016, 5:01PM
Hi I was wondering if anyone knew a dentist that will work with a payment plan. My insurance doesn't cover anything other than extractions and I have been trying to get my smile fixed for almost 8 years now. But I have horrible genetics and when I was young I was never taken to the dentist let alone the doctor. So I have been trying to play catch up my entire adulthood but the damage is done. So its close to 5000. I'm even willing to pull everything and just get dentures. My grandfather had to at my age. If anyone has ideas. I live in pinellas county Florida. 


I just want the pain to stop and feel pretty and take a good picture with my family. 
 
Replied By: jennimonkey92 on May 26, 2016, 11:40AM
I have 18 Q minus syndrome and I was just wondering if anybody else has this if so please contact me I just want to know all the stuff that could happen to me in the future thank you in advanced.
 
Replied By: lalundquist on May 19, 2016, 12:27PM - In reply to duffymom
It  sounds like your daughter has symptoms of Lyme disease.  Especially  if she has been outdoors alot. This can  go undetected for several years.
 
Replied By: jeanietreat on Jan 28, 2016, 6:21PM
Please do research on this.  There is no Cure.  There is no celebrity out there giving it a face.  We need to get the word out so more research can be done.

Multiple System Atrophy, (MSA), is a rare, degenerative neurologic condition that affects both men and women, usually starting at the age of 50 or 60. MSA is considered a type of parkinsonism but with more widespread effects on the brain and body. The condition was first identified in 1962 and named Shy-Drager syndrome for two physicians who reported patients showing a combination of Parkinson-like movement disorders and problems with the autonomic, or body-regulating division of the nervous.  

The rate of MSA is estimated at 4.6 cases per 100,000 people.  MSA progresses more quickly than Parkinson’s and there is no remission from the disease. The average lifespan after the onset of symptoms is 7.9 years. Almost 80% of patients are disabled within five years of onset, and only 20% survive past 12 years.

 My husband, 49, has had this for a few years now.

     May 12, 2015, Tony was diagnosed with Multiple System Atrophy (MSA).  Tony has had 9 doctors in the last 3 years with several tests and treatments.  The doctors have determined that this disease started around 2011. 

Symptoms that Tony has now are:  Slow and Stiff Movements and no Balance, Writing is unreadable and small,  Heart Palitations,  Low Oxygen Level, Urinary Incontinence , Urinary Retention Chronic Constipation,  Vocal Cord Weakness, Choking, Bad Eye Sight, Trouble Regulating Blood Pressure, Trouble Regulating Body Temperature, Anxiety and Depression and PBA, Needs Assistance to Shower, Shave and Dress

Symptoms to come: Sleep Apnea, Low Oxygen, Fainting, Passing Out, Vocal Cord Paralysis, Blindness, Walker, Permanent Catheter, Colostomy,  Wheel Chair, Feeding Tube, Bed-Ridden and  Hospice.

Tony has needed several medications for symptoms and equipment to exercise muscles and lungs, and will continue to need more as the disease progresses. Tony is very hard working and is pushing as hard as he can to fight this while waiting on a cure. The doctors have noted that within 1 to 2 years, Tony will need complete assistance with daily activities.

 Help help us get the word out about this nasty disease. 

 
 
Replied By: teeda4 on Aug 11, 2015, 3:51PM
Several years ago I got sick and I knew I was sick.  I kept going to doctors and they all just more or less brushed me off.  After doing a lot of research myself, I found a specialist on the West Coast and decided to go and see him.  After a year's worth of testing I was diagnosed with cushings disease.

God rest my daddy's soul, he said many times that there were a lot of people out in the world who didn't have my fortitude and gumption to keep at it until I got results.  I knew something was wrong and I meant someone was going to believe me.

I ended up having two transsphenoidal surgeries (pituitary) that were basically unsuccessful.  With each of those I had 2 CSF leaks.  I also had 2 subsequent CSF leaks that had to be repaired.

Due to the transsphenoidal surgeries not being successful, I had to have my adrenal glands removed from the top of my kidneys which has left me with addisons disease.  This has to be controlled with lifelong steroid replacement.  Many people do not realize that without steroids you will die.

It was just my husband and I in Portland, OR all alone all the way across the country.  My bi-laterial adrenalectomy lasted about 8 hours.  We are from Georgia BTW.  My neuro-endocrinologist had the sweetest PA who came and sat with him for about the last 2 hours of the surgery or else he would have been all alone the entire time.

After the BLA my CSF leak blew open again so another surgery to pack it with fat.  Then they had to do another surgery to put in a lumbar peritoneal shunt.  Then I got bloodborne MRSA and bacteremia.  This trip we were in Portland almost 6 weeks with most of in spent in the hospital.  That was in October / November 2006.

We rented a van and my mom flew to Portland and we drove home.  I couldn't fly home due to the CSF leaks.

To say that we have had an adventure through my illness is an understatement.  I now am panhypopituitary and on most all hormone replacements.  I was taking growth hormone but took myself off of it.  Balancing hormones it really hard.  It's not like getting the real thing.  LOL

I've also learned that all endocrinologists are NOT created the same.  Matter of fact, very few understand me.  

My husband has been my ROCK!  Without him and the Good Lord I would have been dead a long, long time ago.  After coming home from Portland I had several other surgeries but that's another long story.

I could tell enough medical stories to write a book.  hehehehe

Today I'm happy to be able to do what I can which is whatever the day allows me to do.  I do not work anymore after an almost 22 year career in industry.  That was hard on me, but I've learned to adjust.

I'm happy to be alive and thankful to the Lord! 
 
Replied By: stellalee on Jun 29, 2015, 7:58PM
I'm only 22 but have a horrible memory and thinking process. It didn't use to be like this, in high school I knew how to do big math problems fast in my head. Not like that anymore. I forgot what both my former username and password was so I created a second account her. I get headaches when I read, have almost no sense of direction, have to ask someone at least 20 times on different occasions what there name is befor i have it memorized, I don't know the date unless its on paper or screen in front of me, and I often draw blanks in conversations. I have partial-complex seizures and a sugar addiction, which can't be helping. I see a neurologist for managing my ati-seizure meds and anual EEGs, but im scared to bring up memory. I fear my doctor will call me "paranoid" or say "don't worry about it", and sometimes replies like that effect me emotionally.
 
Replied By: chandula123 on Jun 28, 2015, 12:03AM
I have a body odor issue which has being haunting me for three semesters of my college life. First my doctors thought i had hyperhydrosis which is excessive sweating, whin in my case is not the problem. I dont sweat that much, but i tend to smell so bad. Most of the time i smell like farts, stools, garbage and piss. I have spend a lot of my money on body soap products, perfumes and even medicine. But nothing worked. So i finally met with a dermetolagist and told me the only way is to control my diet. I am from sri lanka. We eat a lot of curry and spicy food. My question is, that my whole family eats them, then why only do i stink? I have being under a lot of stress, because people around me feels disgusted and move away from me and i dont leave my house because this issue which feels like im issolated. I really need a real answer. Pls dr.phil. My 4th semester is gonna start this fall, before that i need a solution. Please im a desperate student..
 
Showing 1-10 of total 66 Comments